TheAustralian Clinical Trials Alliance toolkitis presented as an interactive map with information on how researchers and research organisations can involve and engage consumers to help shape research throughout its lifecycle (with a focus on clinical trials);
Monash Partners provides free online training modules on consumer and community involvement in research;
INVOLVEin the United Kingdom was established with the aim of advancing public involvement in health and social care research. They provide many practical resources and publications designed to assist researchers with effective consumer involvement;
Cancer Australia provides a downloadable guide for consumer involvement in research, that also has relevant information for other areas of health research;
The Experience Based Co-Design Toolkit by the Australian Healthcare and Hospitals Association aims to equip those working in the health sector with the tools and approaches they need to create authentic and equal partnerships with consumers in order to co-design care and deliver an improved experience;
TheAgency for Clinical Innovation provides information on experience-based co-design, which is a collaborative approach that brings consumers, families, carers and staff together to improve health services. Three important features of experience-based co-design are outlined: ‘Experience,’ ‘Co’ and ‘Design;’
This Guidebook by the James Lind Alliance is a step-by-step guide to the processes involved in a Priority Setting Partnership (PSP). PSPs enable clinicians, patients and carers to work together to identify and prioritise evidence uncertainties in particular areas of healthcare that could be answered by research.
NSW Regional Health Partners respectfully acknowledge Aboriginal people as the past, present and future traditional custodians of the land and recognise their continuing connection to land, waters and culture. We aim to partner with the Elders, community members and community controlled health services to improve health outcomes for Aboriginal people.
An initiative of the National Health and Medical Research Council (NHMRC)