Publications and Reports on Consumer Involvement in Research
What you’ll find?
The involvement of consumers in health and medical research is the subject of a number of publications and reports. Some notable examples are included below.
Values of co-production – A blog piece written by Professor Christine Jorm, Director of NSW Regional Health Partners, outlining the values of co-production and important factors to consider to ensure it is successful.
Evaluation of Australian training workshops for researchers – This study was a cross-sectional, online survey of researchers, students, clinicians, administrators and members of non-government organisations who attended Consumer and Community Involvement Program training workshops between 2009 and 2012. The aim was to ascertain changes to awareness, attitudes and behaviours related to consumer and community involvement in health and medical research.
Patient engagement in research – This systematic review aimed to answer 4 key questions: What are the best ways to identify patient representatives? How to engage them in designing and conducting research? What are the observed benefits of patient engagement? What are the harms and barriers of patient engagement?
GRIPP2 reporting checklists – The GRIPP2 reporting checklists provide the first international guidance for reporting of patient and public involvement in health and social care research. This paper describes the development of GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement evidence base.
Consumer and Community Engagement Framework, developed by the South Australia Health and Medical Research Institute, was created to encourage other health and medical research institutes to also embrace this approach, thereby increasing meaningful consumer and community engagement in research. It was informed by a review of literature and current practice from across the world.
NSW Regional Health Partners respectfully acknowledge Aboriginal people as the past, present and future traditional custodians of the land and recognise their continuing connection to land, waters and culture. We aim to partner with the Elders, community members and community controlled health services to improve health outcomes for Aboriginal people.
An initiative of the National Health and Medical Research Council (NHMRC)
Supported by the NSW Ministry for Health Hub Strategy