Tools for Consumer Involvement

What you’ll find?

group of young adults in consult web

There are various tools for consumer involvement that help researchers to involve community members in their research.

    • The Experience Based Co-Design Toolkit by the Australian Healthcare and Hospitals Association aims to equip those working in the health sector with the tools and approaches they need to create authentic and equal partnerships with consumers in order to co-design care and deliver an improved experience. 
    • The Agency for Clinical Innovation provides information on experience-based co-design, which is a collaborative approach that brings consumers, families, carers and staff together to improve health services. Three important features of experience-based co-design are outlined: ‘Experience,’ ‘Co’ and ‘Design.’ 
    • The Fact Sheet Series by Consumer and Community Participation in Health and Medical Research Network have been developed in response to requests from researchers for short, simple resources/tools to support the implementation of consumer and community participation in health research. 
    • Guidance on Co-Producing a Research Project by INVOLVE UK explains the key principles and features of co-producing a research project and suggests ways to realise the principles and key features.
    • Ten Briefing Notes for Researchers by INVOLVE UK includes information on how to involve members of the public in research. Case studies are provided to illustrate key concepts. 
    • This Guidebook by the James Lind Alliance is a step-by-step guide to the processes involved in a Priority Setting Partnership (PSP). PSPs enable clinicians, patients and carers to work together to identify and prioritise evidence uncertainties in particular areas of healthcare that could be answered by research.
    • The Patient-Centred Outcomes Research Institute (USA) has developed an Engagement in Health Research Literature Explorer to support researchers to find literature on the benefits of consumer involvement.
    • The Australian Clinical Trials Alliance toolkit is presented as an interactive map with information on how researchers and research organisations can involve and engage consumers to help shape research throughout its lifecycle (with a focus on clinical trials).