The following videos are various examples of how consumers have been engaged in research.
Consumer involvement in research – Caleb Rixon is the founder and CEO of Genyus network, an online community of people who have survived trauma and are living with chronic illness. In this video, Caleb talks about how spending time in online communities as a researcher or clinician can help in developing a better understanding of the lived experience of people with illness or disability.
Top tips for consumer involvement in research – This video by local stroke survivor Brenda Booth is a guide to assist researchers with planning for effective involvement of consumers in research projects. Brenda is a consumer representative on the Stroke Foundation Research Advisory Committee and holds numerous other consumer representative appointments with the NSW ACI and Cochrane Collaboration. She is also a member of Health Consumers NSW.
A CALD community example – Dr Christine Walker discusses the importance of consumer consultation for knowledge exchange in primary health care research using a CALD community example at the PHC Research Conference, Adelaide, 30 July 2015.
#BePartofResearch: Jack’s Story – This video from the National Institute for Health Research shows an example of a consumer who got involved with research after being diagnosed with type 1 diabetes. Using a mobile app, the study has helped him manage his blood sugar levels and insulin intake.
The Patient-Centred Outcomes Research Institute – This organisation works with stakeholders across the healthcare community to generate and disseminate evidence that will help patients and those who care for them make better-informed healthcare decisions.
Want to be involved with stroke research? – This video gives an overview of the Hunter Stroke Research Volunteer Register, a register for people who have had a stroke or transient ischaemic attack (TIA) who may wish to become involved in future prevention and rehabilitation research.
NSW Regional Health Partners respectfully acknowledge Aboriginal people as the past, present and future traditional custodians of the land and recognise their continuing connection to land, waters and culture. We aim to partner with the Elders, community members and community controlled health services to improve health outcomes for Aboriginal people.
An initiative of the National Health and Medical Research Council (NHMRC)
Supported by the NSW Ministry for Health Hub Strategy